CEDAR RAPIDS, Iowa (KWWL) — The new year is a time for new goals, hopes and dreams for 2019, but for one Cedar Rapids family, their goal is simple. Raise enough money so their daughter, Tobin can see many more new years to come.
Tobin Hansen has a rare illness called Canavan Disease. Most kids with the disease don’t live past age 10. An outcome parents, Meagan and Heath are trying to beat.
Tobin is a special little 15-month-old girl. One of about 300 in the world diagnosed with Cavanan, an extremely rare brain disease, that slowly destroys the white matter in the brain, explains Tobin’s mom, Meagan Rockwell.
“As it progresses she’ll lose her abilities, like her ability to swallow and sometimes to breathe on their own, just it slowly kills them,” said Rockwell.